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Doug Lynch is 41 years old and he was diagnosed when he was 37. He had all the symptoms related to the disease during his life.
He lives in New Zeland and he says he is lucky as he does not have to work “The NZ government gives me a nice handicap benefit to live off” says Doug.
He has a family and he says his 2 boys give him a reason to keep going in life. His hobby is to paint. He paints using 1 colour and lots of greys because of his colourblindness
He also has a message for all Wolfram syndrome patients:
“WS is a horrible thing, but we must keep going. Try to find something you like and are good at. Don’t let WS hold you back”