As well as Rafaela, other people live with Wolfram. Some are diagnosed too late due to lack of information, lack of knowledge and that is why the WolframInside was created. A website to inform, a project to help.
“There will be a space for me to expose my feelings, ideas, support people facing the same journey as me, and to bring a little bit of information and knowledge I’ve acquired throughout my trajectory” – Rafaela says.
WolframInside started on 07 December 2016, in a lovely party at the restaurant Dado Bier, in Porto Alegre, Brazil. The contribution of each supporter was essential to the success of the event. Now we need you to reach our goal. We are available for lectures, meetings and to inform about the Wolfram Syndrome.
Help Rafaela to disclose the cause. Like, share, talk to your family and friends.
Check out the video of the release in its entirety and meet this idea: