Patients

Doug Lynch is 41 years old and he was diagnosed when he was 37. He had all the symptoms related to the disease during his life. He lives in New Zeland and he says he is lucky as he does not have to work “The NZ government gives me a…...

Leonardo Sabino is 29 years old and was officially diagnosed with Wolfram syndrome 4 years ago. Tragically, the pacient says he developed blindness in a short time when he was just 18 years old. Leo also suffers with osteoporosis, severe hearing loss, bladder issues and diabetes mellitus. Even having a…...

Deived Elton is 27 years old and was diagnosed with Wolfram syndrome when he had already developed diabetes, optic neuropathy and hearing loss. He was diagnosed with the disease two years ago by a geneticist. Deived is full of pure energy! He is already married, plays piano and he is…...

Raquel Gebel is a gorgeous 12-year-old girl who was diagnosed with Wolfram syndrome in the fall of 2010 when she had already developed diabetes mellitus type 1 and optic nerve atrophy. Even being so young, Raquel is already blind in one eye and legally blind in the other one. She also…...

Natã do Vale was diagnosed with profoundly deaf when he was just 7 months. With 3 years old he received a cochlear implant on the right ear. Due to her deaf, Natã has not already developed her full speech and he has to communicate by pounds. Later, after start failing…...