Visit to the Washington University Research Center in St. Louis (USA)

On May 8, 2016, the patient Rafaela, accompanied by her parents, had a medical consultation with the researcher of “Washington University”, Doctor Fumihiko Urano. At the consultation, they talked about a research on Wolfram Syndrome. This research, conducted by Dr. Fumihiko is based on an existing drug called Dantrolene. On the same day, the family also met the Snow Foundation founder Stephanie Snow Gabel. The foundation is the largest worldwide organization created to raise funds for research on Wolfram Syndrome.

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